Aids that are frequently used for Ehlers-Danlos syndrome (EDS):

Aids and support for everyday life

Ehlers-Danlos syndromes cannot be cured, which is why the focus of medical aids is on protecting the joints, relieving pain and maintaining mobility:

• Joint protection & orthoses: This is the most important area. Custom-made orthoses, supports or special silver rings (ring orthoses for the fingers) stabilize unstable joints and prevent overstretching.
• Mobility aids: Active wheelchairs or lightweight wheelchairs may be necessary to relieve pressure on joints during longer journeys and minimize fatigue. These should be configured in such a way that they do not overload the shoulder joints when being pushed.
• Writing and everyday aids: Ergonomic pen holders, specialized keyboards or handle thickeners help to protect the small wrists at school and in everyday life.
• Sitting and lying comfort: As lying down is often painful, pressure-relieving mattresses or special positioning cushions help to keep the body stable and pain-free.
• Compression garments: Special compression garments can not only help with vascular problems, but also improve the body's self-perception (proprioception) through the pressure.

EDS is often diagnosed late, as symptoms such as "joint pain" or "bruising" are often underestimated. If you suspect that you have Ehlers disease, insist on a visit to the human genetics department.

Once the diagnosis of Ehlers-Danlos syndrome (EDS) has been confirmed, a long-term prescription for treatment is possible.

Children, adolescents and adults are entitled to long-term prescriptions for physiotherapy and occupational therapy without these prescriptions affecting the budget of the prescribing doctor.