Type 1 diabetes
Aids and support in everyday life
Due to the daily management of blood glucose levels and insulin, a well-coordinated supply of aids is crucial for safety and quality of life:
Blood glucose monitoring: blood glucose meters and CGM systems (continuous glucose monitoring) help to monitor blood glucose regularly and reliably.
Insulin therapy: Insulin pumps enable continuous insulin delivery and make everyday life easier compared to multiple injections.
Connectivity & control: Many systems can be connected to apps or receivers so that values can be monitored in real time and viewed remotely.
Everyday safety: Alarms in the event of hypoglycaemia or hyperglycaemia help you to react quickly and avoid critical situations.
School & care: Tools such as remote monitoring or simple measuring systems make it easier for daycare centers, schools and other caregivers to provide care.
Everyday life & relief: Modern technology makes everyday life easier to plan and gives children and parents more security and flexibility.
Aids that are frequently used for ADNP syndrome:
What is ADNP syndrome?
ADNP syndrome (also known as Helsmoortel-Van der Aa syndrome) is a rare genetic disorder caused by changes in the ADNP gene. This gene plays an important role in the development of the brain and the regulation of many other genes.
Children with ADNP syndrome usually show severe developmental delay, autism spectrum symptoms, pronounced speech disorders and intellectual impairment. Hypotonia (low muscle tone), sleep disorders, cardiac or gastrointestinal problems and typical facial features are also common.
The progression is not progressive, but the symptoms are permanent and require intensive support, therapies and often aids to support everyday life.
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You can find more helpful information about ADNP syndrome here:
www.orpha.net